This study aims to provide an understanding of the nature, extent, and quality of the research evidence on identity fraud victimization in the US. Specifically, this article reviews, summarizes, and comments on the state of empirical research of identity fraud victimization in the US based on a narrative review of 52 published empirical studies. Studies included in this review suggest that the prevalence of identity fraud in the US has increased over the years and existing account frauds is the most prevalent type of identity fraud. There is a pressing need for more research on the prevalence of identity fraud victimization among minors, institutionalized individuals, and individuals from minority groups; long-term prevalence of identity fraud victimization; and emerging forms of identity fraud such as synthetic identity fraud victimization. Studies included in this review further suggest that identity fraud risk factors vary based on the fraud type considered. Identity fraud victims can experience a variety of harms. Longitudinal studies following identity fraud victims are essential for reliably estimating the risk factors for identity fraud victimization and the impact of identity fraud victimization on individual victims. The research on services for identity fraud victims is limited and suggests the positive impact of trauma-informed services for serious identity fraud victims. The overwhelming lack of research on the impact of programs and services for identity fraud victims necessitates more attention from scholars to study the impact of programs, interventions, and services for identity fraud victims on reporting of victimization, prevention of victimization, experiences of victims, and victim-centered cost benefit analysis of services. Policy and practice implications of these findings are discussed.
Identity theft and associated frauds have increasingly attracted public attention in the United States (US) with highly publicized data breaches and millions becoming victims of this crime every year. Efforts to educate the public about identity theft have raised attention to the risks of identity theft and fraud, however, an in-depth exploration of identity fraud victimization is needed to further the field’s and the public’s understanding of this crime.
Despite the comparatively scant evidence on identity theft in the field of criminology, the research on identity theft in the US has started picking up speed in the past decade with the availability of nationally representative data on this topic through the Bureau of Justice Statistics’(BJS) National Crime Victimization Survey Identity Theft Supplement (NCVS-ITS). The NCVS is the US’s primary data source on victimization since 1972. The NCVS is administered to non-institutionalized individuals who are 12 years old or older from a nationally representative sample of households in the US. The ITS is a supplemental survey to the NCVS which is administered to the respondents to the NCVS survey who are 16 years old or older. The ITS was first implemented in 2008 and gets fielded approximately every two years. This leading national level data source on identity theft victimization asks respondents if they had been victims of different forms of identity theft in the past 12 months and beyond the past year and the characteristics and consequences of victimization and help-seeking behavior if respondents indicate they had been victims of identity theft.
There has been a few review studies on the state of the US literature on identity theft through funding by the Department of Justice offices. For instance, the first literature on identity theft by Newman and McNally (2005) funded by the National Institute of Justice explored what is known about identity theft and the knowledge gaps based on their review of publications of different organizations, complaint data, less than 10 surveys conducted by different organizations, and a handful of research studies published at the time of that review. Another review study by Irvin-Erickson and Ricks (2019) funded by the Office for Victims of Crime examined the state of the literature on fraud victimization based on research evidence from academic and non-academic sources and practice evidence sources (such as fact sheets, podcasts, and other sources that are not traditionally considered in reviews) published between 2000 and 2018. This study expands upon the aforementioned reviews by considering not only the scope of the literature on identity theft victimization published in the past two decades but also the quality of conduct of these studies to provide a broad yet nuanced understanding of the state of the literature on this topic and the knowledge gaps. Although the aforementioned reviews provided invaluable information about the opportunity structure, risks, and consequences of identity theft victimization and the needs of identity theft victims, similar to other traditional narrative reviews of the literature in the grey literature, these reviews did not include risk of bias and quality assessments of the sources of evidence included in these reviews. The current study fills this critical knowledge gap in our understanding of the state of the literature on identity fraud victimization through consideration of the risk of bias and the quality of each study included in this review.
Despite the increase in the number of studies on the topic of identity theft victimization over the past decade, the evidence base on identity theft victimization is still limited. Accordingly, this review did not follow the format of a systematic review and instead followed steps similar to a scoping review to gain an understanding of the nature, extent, and quality of the research evidence on identity fraud victimization. Specifically, this review aimed to answer the following questions to present the size, scope, and quality of the emerging evidence base on identity fraud victimization:
By answering these questions, this review primarily aims to provide suggestions for future research on identity fraud victimization including potential research questions for future systematic reviews as the evidence base on this topic becomes denser at which point researchers can conduct larger knowledge syntheses. Accordingly, although risk of bias and quality of studies are assessed for each study included in this review, a meta-analysis or statistical pooling of studies has not been performed.
There is an increased interest in the field to differentiate between the terms of identity theft and identity fraud because not all identity theft incidents involve a fraudulent act at the time of theft of personal information. Javelin Strategy and Research (2021) defines identity theft as “unauthorized access of personal information” and identity fraud as identity theft incidents in which there is an element of financial gain. The Federal Trade Commission (FTC) and the BJS define identity theft as “fraud that is committed or attempted using a person’s identifying information without authority” (FTC, 2004; Harrell, 2019, p. 18). The acts considered by the BJS under this definition include unauthorized use or attempted use of an existing account, unauthorized use or attempted use of personal information to open a new account, and misuse or attempted misuse of personal information for a fraudulent purpose (Harrell, 2019).
Researchers differentiated between three stages of identity theft: acquisition of personal information, use of personal information for illegal financial or other gain, and discovery of identity theft (Newman & McNally, 2007). Personal information can be acquired through different means ranging from simple physical theft to more complex and even legal ways such as scams, cyber, or mechanical means and purchasing the information from data brokers. The acquired personal information is used for financial gain or other criminal purposes (Newman & McNally, 2007). However, fraudulent use of information might not happen at the time of acquiring of information and once personal information is exposed, a person can become an identity theft victim multiple times.
Another important stage of identity theft is the discovery of theft of personal information and associated frauds because the longer the discovery period is the less likely it is for victims to contact law enforcement (Randa & Reyns, 2020) and the more likely it is for them to experience aggravated consequences (Synovate, 2007). Police reports are critical for victims to pursue an identity theft case (OVC, 2010). For victims of certain forms of identity theft, the discovery of victimization can take as long as 6 months or more (Synovate, 2003, 2007). In cases where personal information is exposed due to data breaches, victims might have greatly varying experiences of when and what they learn about this exposure (if at all) and the services available to them. Currently, all 50 states, the District of Columbia, Guam, Puerto Rico, and the Virgin Islands have laws requiring businesses, and in most states, government organizations to notify individuals of security breaches involving personal information (National Conference of State Legislatures, 2022). However, the decisions of organizations on whom to notify (such as the victims, the FTC, or law enforcement), when to notify, and how to notify can drastically vary from one geography to another based on laws. Two groups can become targets of identity fraud: individuals whose personal information is stolen and organizations which are in care of the stolen personal information or which become targets of fraud. Law enforcement might be more likely to put emphasis on organizations as visible and collective targets of identity theft (Newman & McNally, 2005).
In recognition of the stages and targets of identity theft, there has been an interest in the field to differentiate between the terms of identity theft and identity fraud. In popular knowledge, the terms “identity theft” and “identity fraud” have been used interchangeably considering the interrelated nature of acts considered under these terms. However, it is acknowledged that these terms legally refer to different things (Newman & McNally, 2005).
In statute, identity theft was legally defined at the federal level with the Federal Identity Theft and Assumption Deterrence Act (ITADA) of 1998 (Newman & McNally, 2005). ITADA made it a federal offense to “knowingly transfer or use, without lawful authority, a means of identification of another person with the intent to commit, or to aid or abet, any unlawful activity that constitutes a violation of Federal law, or that constitutes a felony under any applicable State or local law” (the Identity Theft Act; U.S. Public Law 105-318). Prior to this legal definition of identity theft in the US, the terms “identity theft” and “identity fraud” were used to primarily distinguish between the individual victims and collective victims with the former being referred to as victims of identity theft and the latter as victims of identity fraud (McNally & Newman, 2008). In later years, these terms have been used to differentiate between the act of unlawful acquisition of identity information and the fraudulent use of personal information.
Over the years, different research and practice sources have generally considered the following acts under identity theft and identity fraud: criminal identity theft in which individuals use others’ personal information during interactions with law enforcement or for committing other crimes (Button et al., 2014); existing account frauds where an individual makes unauthorized charges to existing accounts such as bank, credit card, and other existing accounts; medical/insurance identity theft in which an individual fraudulently uses somebody else’s personal information to receive medical care; new account frauds in which an individual’s personal information is used unlawfully to open a new account; social security number (SSN) related frauds in which an individual uses the victim’s SSN to file for a tax return, for employment, or to receive government benefits; and synthetic identity theft in which different pieces of real and fake identity information are combined together to create an identity and to commit frauds (Dixon & Barrett, 2013; FTC, 2017, 2018; GAO, 2017; Pierce, 2009).
Earlier research on perpetrators of identity theft, using a conceptual framework informed by Cornish and Clarke’s (1986) Rational Choice Theory and the methodology of crime script analysis, has focused on the motivations and methods of committing identity frauds (see Copes & Vieraitis, 2009, 2012) and the impact of experiences of perpetrators’ on their criminal involvement and criminal event decisions (Vieraitis et al., 2015). Regarding the organizational level of identity frauds, research has shown that perpetrators of identity theft and fraud might range from individuals to street-level and more advanced criminal organizations (Copes & Vieraitis, 2009, 2012; Newman & McNally, 2007). Although earlier research has shown that perpetrators of identity theft used low-technology methods (Copes & Vieraitis, 2009, 2012), perpetrators of identity theft have started using more complex schemes and relying more heavily on the internet to acquire identity information over the years (Pascual et al., 2018).
The number of identity fraud victims who know the perpetrators has decreased over the years. For instance, in 2008, about 40% of identity fraud victims knew how the incident happened, and from those, about 30% believed that their information was stolen during a purchase or other interaction and 20% believed that their personal information was stolen from their wallet, 14% believed the information was stolen from files at an office, and another 8% believed that the information was stolen by friends or family (Langton & Planty, 2010). In 2012, about 32% of identity victims in the US knew how their personal information was stolen and 9% knew the identity of the perpetrator (Harrell & Langton, 2013). Comparatively, in 2018, 25% of identity fraud victims knew how the offender obtained the information and 6% of victims knew something about the perpetrator (Harrell, 2021). This unknown status of how the information is obtained or who the perpetrator is sometimes interpreted as the technology-facilitated nature of the acquisition of information (Newman & McNally, 2005). However, victims of instrumental identity theft in which an individual’s information is stolen to commit other frauds and crimes, and individuals who have been victims of multiple types of identity theft in the recent past, are more likely to know how their information was stolen and the perpetrator (Harrell, 2019). New research examining the impact of the pandemic on identity fraud further suggest an increase in identity fraud scams and loan fraud in which perpetrators directly target consumers and a significant portion of victims of identity fraud scams and loan fraud (about 3 in every 4 victims) knowing their perpetrators (Buzzard & Kitten, 2021).
The most frequent way identity theft victims become known to authorities in the US is complaints to financial institutions (Harrell, 2021). The other ways victims report their victimization include complaints to federal institutions [such as the FTC and the Internet Crimes Complaint Center (IC3)] and non-governmental organizations [such as the Identity Theft Resource Center (ITRC) and the National Consumers League (NCL)] and crime reports to law enforcement.
In the past decade, federal and non-profit organizations increased their efforts to educate consumers on risks and reporting of identity theft and how to deal with the ramifications of fraud victimization. Several federal and other organizations provide information for services victims can receive such as reporting and assistance hotlines, civil and criminal legal services, and trauma informed counseling. Other available responses to identity theft include credit and identity theft monitoring, identity theft insurance, and identity theft restoration; however, these responses are typically provided by for-profit companies. Depending on who the victim contacts, victims might not be uniformly informed about all options available to them. Many victim service providers working in organizations funded by the Victims of Crime Act do not have the resources to recognize and respond to fraud’s harms (OVC, 2010). Furthermore, even when services are available, there might be significant barriers against victims’ access to these resources including financial barriers. Currently, majority of services available to identity theft victims are geared towards handling out-of-pocket expenses.
At the time of this review, there was a fast evolving opportunity structure for identity theft and identity fraud due to the hardships inflicted on individuals by the economic and health crises. Direct stimulus payments, increased loan applications, and the overall increase in online activities during the pandemic have provided increased opportunities for identity frauds such as account takeovers (Tedder & Buzzard, 2020) and identity frauds in relation to scams (Buzzard & Kitten, 2021). Furthermore, low-income individuals, older individuals, individuals who depend on others for their care, and individuals who might not have control over their finances can experience aggravated harms as a result of identity fraud victimization. Furthermore, some victims might experience a significant damage to their reputations (Button et al., 2014). All of these conditions necessitate more scientific inquiry and a better understanding of existing research evidence base on identity fraud.
This review focuses only on identity fraud victimization and excludes studies that focus on theft of personal information but not the fraud aspect of identity theft. As an example, although skimming, intentional data breaches, and mail theft are acts of identity theft, if a research study focused solely on these acts but not the fraud aspect, that study was excluded from the review. The review further excluded research on identity frauds targeting organizations and governments, harms of identity fraud to businesses and institutions, and research studies focusing on victims in countries other than the US. The review also excluded sources in which no data collection and analysis was attempted, paid research content, and research summaries with limited or no information about methodology.
The current review included empirical research studies that focus on identity fraud victimization in the US which were published in English and between January 2000 and November 2021. The resources that were reviewed included journal articles, PhD dissertations, government reports, and other reports found in major social science research databases and on websites of organizations focusing on identity theft. This review adopted a broad definition of “empirical” research focusing on studies using both quantitative and qualitative data analysis methods including descriptive analysis.
In this review, a comprehensive search strategy was used to search the literature for relevant studies. The search strategy was consisted of (1) a formal search of academic databases using search strings based on Boolean operators Footnote 1 and (2) an informal search of grey literature using keyword searches and searches on the websites of organizations focusing on identity fraud. Searches were conducted in the following academic databases: Proquest Social Sciences Collection, Web of Science Social Sciences Citation Index, Wiley Online, JSTOR, Criminal Justice Abstracts, SocIndex Full text, and Violence and Abuse Abstracts. Additional searches were completed on the websites of the BJS, the Internet Crime Complaint Center (IC3), the FTC, the ITRC, Javelin, the National White Collar Crime Center (NW3C), and the Ponemon Institute.
299 potential studies were identified through database searches (excluding duplicate records) and 37 publicly available empirical studies were identified from websites of leading organizations on identity fraud. Ultimately, 29 sources from these database searches and 23 sources from the aforementioned organizations met the inclusion criteria for this review (see Appendix 1 for the screening process). These included articles are denoted with an asterisk (*) in the references section.
Studies included in this review were appraised for methodological quality. Quality appraisal was conducted after deeming a study eligible for the review based on the inclusion criteria specified earlier. Appendix 2 and Appendix 3 show the two quality appraisal tools that were adapted from Hoy et al. (2012) and Mays and Pope (2020). Each quantitative study was assigned into one of three categories based on the evaluation of risk of study bias: low, moderate, or high risk of bias. Each qualitative study was assigned into one of three categories based on the evaluation of quality: low, medium, or high quality. For the only mixed-method study in this review, risk of bias and study quality were evaluated separately for qualitative and quantitative elements of the study. More information about quality rating process and quality ratings of studies can be found in Appendix 4 and notes on bias and quality assessments for included studies can be found in Appendix 5.
Of the 52 studies included in this review, the majority were NGO reports (n = 22) followed by journal articles (n = 18), government reports (n = 7), and PhD dissertations (n = 5). Almost all of the white papers from government organizations and NGOs (n = 28) were descriptive quantitative studies. All of the white papers included in this review (n = 29) were based on survey data. Of the 23 academic studies (i.e., journal articles and dissertations) included in the review, 19 quantitative studies used surveys and 4 qualitative studies used interviews or focus groups discussions as their data source. Among these 23 academic studies, the primary data analysis method was regression analysis (n = 15) followed by descriptive quantitative data analysis (incidence, correlation, ANOVA analyses (n = 4), narrative analysis (n = 3), and phenomenological analysis (n = 1). Only one quantitative study included in this review used a quasi-experimental design with propensity score matching, and none of the quantitative studies included in the review had random assignment. The earliest journal article included in this review was published in 2006 and half of the journal articles included in this review (n = 9) were published between 2019 and 2021 (n = 9).
The studies in this review thematically fell into one or more of the following four areas of identity fraud victimization research: (1) prevalence, incidence, and reporting, (2) risk factors, (3) harms, and (4) prevention, programs, and services. From the 52 studies included in this review, 31 focused on harms, 22 focused on prevalence, incidence, and reporting, and 15 focused on risk factors. Notably, only 3 studies included in this review focused on services for identity fraud victims and among these studies there were no experiments with random assignment focusing on the effectiveness of specific programs or interventions for identity fraud victims (see Table 1 for subtopics and citations of identity fraud studies included in this review).
Note: If there is insufficient information in the article to permit a judgment for a particular item, please answer No (HIGH RISK) for that particular item.
Risk of bias item
Criteria for answers
External validity
1. Was the study’s target population a close representation of the national population in relation to relevant variables?
• Yes (LOW RISK): The study’s target population was a close representation of the national population
• No (HIGH RISK): The study’s target population was clearly NOT representative of the national population
2. Was the sampling frame a true or close representation of the target population?
• Yes (LOW RISK): The sampling frame was a true or close representation of the target population
• No (HIGH RISK): The sampling frame was NOT a true or close representation of the target population
3. Was some form of random selection used to select the sample, OR, was a census undertaken?
• Yes (LOW RISK): A census was undertaken, OR, some form of random selection was used to select the sample (e.g., simple random sampling, stratified random sampling, cluster sampling, systematic sampling)
• No (HIGH RISK): A census was NOT undertaken, AND some form of random selection was NOT used to select the sample
4. Was the likelihood of non-response bias minimal?
• Yes (LOW RISK): The response rate for the study was > / = 75%, OR, an analysis was performed that showed no significant difference in relevant demographic characteristics between responders and nonresponders
Internal validity
5. Were data collected directly from the subjects (as opposed to a proxy)?
• Yes (LOW RISK): All data were collected directly from the subjects
• No (HIGH RISK): In some instances, data were collected from a proxy
6. Was an acceptable case definition used in the study?*
• Yes (LOW RISK): An acceptable case definition was used
• No (HIGH RISK): An acceptable case definition was NOT used
7. Was the study instrument that measured the parameter of interest shown to have reliability and validity (if necessary)?
• Yes (LOW RISK): The study instrument had been shown to have reliability and validity (if this was necessary), e.g., test–retest, piloting, validation in a previous study, etc
• No (HIGH RISK): The study instrument had NOT been shown to have reliability or validity (if this was necessary)
8. Was the same mode of data collection used for all subjects?
• Yes (LOW RISK): The same mode of data collection was used for all subjects
• No (HIGH RISK): The same mode of data collection was NOT used for all subjects
9. Was the length of the shortest prevalence period for the parameter of interest appropriate?*
• Yes (LOW RISK): The shortest prevalence period for the parameter of interest was appropriate (e.g., point prevalence, one-week prevalence, one-year prevalence)
• No (HIGH RISK): The shortest prevalence period for the parameter of interest was not appropriate (e.g., lifetime prevalence)
10. Were the numerator(s) and denominator(s) for the parameter of interest appropriate?*
• Yes (LOW RISK): The paper presented appropriate numerator(s) AND denominator(s) for the parameter of interest
• No (HIGH RISK): The paper did present numerator(s) AND denominator(s) for the parameter of interest but one or more of these were inappropriate
11. Summary item on the overall risk of study bias
• LOW RISK OF BIAS: Further research is very unlikely to change our confidence in the estimate
• MODERATE RISK OF BIAS: Further research is likely to have an important impact on our confidence in the estimate and may change the estimate
• HIGH RISK OF BIAS: Further research is very likely to have an important impact on our confidence in the estimate and is likely to change the estimate
Features/processes of the study
Quality indicators (i.e., possible features of the study for consideration)
1. How credible are the findings?
Findings are supported by data/study evidence
Findings ‘make sense’; i.e., have a coherent logic
Findings are resonant with other knowledge
Corroborating evidence is used to support or refine findings (other data sources or other
2. How has knowledge or understanding been extended by the research?
Literature review summarizing previous knowledge and key issues raised by previous research
Aims and design related to existing knowledge, but identify new areas for investigation
Credible, clear discussion of how findings have contributed to knowledge and might be
applied to policy, practice, or theory development
Findings presented in a way that offers new insights or alternative ways of thinking
Limitations of evidence discussed and what remains unknown or unclear
3. How well does the study address its original aims and purpose?
Clear statement of aims and objectives, including reasons for any changes
Findings clearly linked to purposes of the study
Summary/conclusions related to aims
Discussion of limitations of study in meeting aims
4. How well is the scope for making wider inferences explained?
Discussion of what can be generalized to the wider population from which the sample was
drawn or cases selected
Detailed description of the contexts in which the data were collected to allow assessment of
applicability to other settings
Discussion of how propositions/findings may relate to wider theory and consideration of
Evidence supplied to support claims for wider inference
Discussion of limitations on drawing wider inferences
5. How defensible is the research design?
Discussion of how the overall research strategy was designed to meet the aims of the study
Discussion of rationale for study design
Convincing argument for specific features/components
Use of different features and data sources evidence in findings presented
Discussion of limitations of design and their implications for evidence produced
6. How well defended is the sample design or target selection of cases/documents?
Description of study locations, and how and why chosen
Description of population of interest and how sample selection relates to it
Rationale for selection of target sample, settings or documents
Discussion of how sample/selections allowed necessary comparisons to be made
7. How well is the eventual sample composition/case inclusion described?
Detailed description of achieved sample/cases covered
Efforts taken to maximize inclusion of all groups
Discussion of any missing coverage in achieved samples/cases and implications for study
Documentation of reasons for non-participation among sample approached or cases
Discussion of access and methods of approach, and how these might have affected coverage
8. How well were the data collected?
Discussion of who collected the data; procedures and documents used; checks on origin,
status, and authorship of documents
Audio- or video-recording of interviews, focus groups, discussions, etc. (if not, were
justifiable reasons given?)
Description of conventions for taking field notes
Description of how fieldwork methods may have influenced data collected
Demonstration, through portrayal and use of data. that depth, detail, and richness were
achieved in collection
9. How well has the analysis been conveyed?
Description of form of original data (e.g., transcripts, observations, notes, documents, etc.)
Clear rationale for choice of data management method, tools, or software package
Evidence of how descriptive analytic categories, classes, labels, etc. were generated and used
Discussion, with examples, of how any constructed analytic concepts, typologies, etc. were
devised and used
10. How well are the contexts of data sources retained and portrayed?
Description of background, history and socioeconomic/organizational characteristics of study
Participants’ perspectives/observations are placed in personal context (e.g., use of case studies,
vignettes, etc. are annotated with details of contributors)
Explanation of origins of written documents
Use of data management methods that preserve context (i.e., facilitate within case analysis)
11. How well has diversity of perspectives and content been explored?
Discussion of contribution of sample design/case selection to generating diversity
Description of diversity/multiple perspectives/ alternative positions in the evidence
Evidence of attention to negative cases, outliers or exceptions (deviant cases)
Typologies/models of variation derived and discussed
Examination of reasons for opposing or differing positions
Identification of patterns of association/linkages with divergent positions/groups
12. How well has detail, depth and complexity (i.e., richness) of the data been conveyed?
Use and exploration of contributors’ terms, concepts and meanings
Portrayal of subtlety/intricacy within data
Discussion of explicit and implicit explanations
Detection of underlying factors/influences
Identification of patterns of association/conceptual linkages within data
Presentation of illuminating textual extracts/observations
13. How clear are the links between data, interpretation and conclusions?
Clear conceptual links between analytic commentary and presentation of original data (i.e.
commentary relates to data cited)
Discussion of how/why a particular interpretation is assigned to specific aspects of data, with
illustrative extracts to support this
Discussion of how explanations, theories, and conclusions were derived; how they relate to
interpretations and content of original data; and whether alternative explanations were
Display of negative cases and how they lie outside main propositions/theory; or how
propositions/theory revised to include them
14. How clear and coherent is the reporting?
Demonstrates link to aims/questions of study
Provides a narrative or clearly constructed thematic account
Has structure and signposting that usefully guide reader
Provides accessible information for target audiences
Key messages are highlighted or summarized
Reflexivity and neutrality
15. How clear are the assumptions, theoretical perspectives and values that have shaped the research and its reporting?
Discussion/evidence of main assumptions, hypotheses and theories on which study was
based and how these affected each stage of the study
Discussion/evidence of ideological perspectives, values, and philosophy of the researchers
and how these affected methods and substance of the study
Evidence of openness to new/alternative ways of viewing subject, theories, or assumptions
Discussion of how error or bias may have arisen at each stage of the research, and how this
threat was addressed, if at all
Reflections on impact of researcher(s) on research process
16. What evidence is there of attention to ethical issues?
Evidence of thoughtfulness/sensitivity to research contexts and participants
Documentation of how research was presented in study settings and to participants
Documentation of consent procedures and information provided to participants
Discussion of how anonymity of participants/sources was protected, if appropriate or
Discussion of any measures to offer information, advice, support, etc. after the study where
participation exposed need for these
Discussion of potential harm or difficulty caused by participation and how avoided
17. How adequately has the research process been documented?
Discussion of strengths and weaknesses of data sources and methods
Documentation of changes made to design and reasons; implications for study coverage
Documents and reasons for changes in sample coverage, data collection, analysis, etc. and
Reproduction of main study documents (e.g., interview guides, data management
frameworks, letters of invitation)
This review adopted criteria from Hoy et al.’s (2012) risk of bias evaluation tool (see Appendix 2) to evaluate the risk of bias within quantitative studies. Hoy et al.’s (2012) risk of study bias assessment, similar to the GRADE approach, does not include a numerical rating but rather evaluates the overall risk of bias based on assessment of risk of bias of individual risk items (Hoy et al., 2012). Each quantitative study in this study was assigned into one of the following three categories based on an overall evaluation of risk of study bias based on this tool: low risk of bias, moderate risk of bias, or high risk of bias (see below for individual study ratings and Appendix 5 for bias/quality notes).
Seventeen appraisal questions from Mays and Pope (2020) were used to evaluate the quality of qualitative studies based on the reporting of findings, study design, data collection, analysis, reporting, reflexivity and neutrality, ethics, and auditability of the studies (see Appendix 3). In this review, each qualitative study was allocated into one of the following three categories based on an overall evaluation of the study quality based on these 17 indicators: low quality, medium quality, or high quality (see below for individual study ratings and Appendix 5 for bias/quality notes).
For the only mixed-method study included in this review (see ITRC, 2003), the risk of bias and the study quality were evaluated separately for qualitative and quantitative elements of the study utilizing the frameworks by Hoy et al. (2012) and Mays and Pope (2020) (see below for individual study rating and Appendix 5 for bias/quality notes).